Want to Start a "Hope for Lilyan" Blog. Update on CCAM and Recent Prayer Request

We used Caring Bridge, and Wordpress for my mother as she battled cancer and lost her fight. We made her Caring Bridge site public. Since she was a strong pillar in her community with many non-close friends and acquaintances it was easier to keep a daily blog on her struggle and tell people about the site, than explain it every single time we ran into concerned friends. As far as explanation it was a bit self explanatory and part learn as we went along. There are many sites that offer tips and advice on blogs, I just googled or Binged them.

All my positive and happy thoughts to you and Lilian. Strong, optimistic parents will help her along!

Caring Bridge is a good site and anyone interested can keep up with your story, progress, etc.

Positive thoughts go out to you!

Sending Hugs...

What a beautiful name.

I read a website blog : randycourtneytripproth.blogspot.com. check it out.
Her name is so beautiful, I am sure your daughter is as pretty as her name.
I know it is frightening, but try to be strong for ur daughter. Baby has the bonding with her mom's heart. Try to be positive thinking. Writing a blog and share your stories is helpful for you and others. Maybe God chose you, so finally some other moms can find resource and helps.

Be strong mom and dad. God chose the warriors, the strongest ones to pass the most difficult journeys. He knows you will be able to pass through this.

Even though as if now you are all alone, God is in control. I will pray for the best for Lilyan. Some tips( hope u don't mind): Try if possible to give her breastmilk. Breastmilk is really helpful. My son, who was born with cleft lip and palate, had good health with breastmilk( he never got cold and cough and so on), make sure not do dusting and smoking near the baby. Maybe change the bedding and pillow to a non allergic ones. Never put her on the carpet. These tips were given to me when I had my son. He has cleft lip thatalso make his lungs vulnerable ( we have nose as the filter, while his mouth is open wide and gave access to lungs directly).

My SIL used Caring Bridge ~ I believe we were *invited* to her blog, but there may be an option to make it public. Worth looking at b/c the site was fabulous!

Keeping you and your little one in my prayers!

Hi E.-

First...sending healing thoughts!

There are 2 sites I am aware of (free) that allow you to journal/send updates for people who are ill. One is 'care pages'...and the other is 'caring bridge'.

I am not familiar with CCAM...but will keep sending thoughts and prayers your way.

Best Luck!
michele/cat

Hugs, prayers and positive thoughts going out to you. I love her name!

I have heard absolutely wonderful things about Caring Bridge. From the responses below, it looks like others have too. I will say a prayer for your family now.

"The child psychologist who thought she had all the answers to parenting until she became one herself." www.themommypsychologist.com

I used www.lotsahelpinghands.com for my friend battling leukemia.
Not sure if there's a public option but it's a great way to keep people updated, informed and connected for a common cause.
It also has a "task calendar" that can be used for transportation help, meal deliveries, etc.
It's been GREAT for us!
Good luck and God Bless your little O..